Company intelligence
CSNK2A1 Foundation
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome.
About CSNK2A1 Foundation
CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers. We aim to accomplish our mission by: * financing and encouraging meaningful research, * providing support to individuals affected and those that care for and love them, * promoting awareness, * educating patients, caregivers and health professionals and * advocating for issues important to our community. Okur-Chung Neurodevelopmental Syndrome is a rare genetic disorder first identified in 2016. OCNDS is caused by a mutation in the CSNK2A1 gene which is located on Chromosome 20. The gene CSNK2A1 creates a protein called CK2 which plays a crucial role in development. A mutation in this gene disrupts typical development. CSNK2A1 Foundation is a 501(c)(3) non-profit organization. EIN #82-4220939
Verified activity
Signals from CSNK2A1 Foundation
6 published signals
Presence & Recognition
CSNK2A1 Foundation released Episode 6 of Roadmap to Rare on Wednesday, September 9.
Reported by CSNK2A1 Foundation
People
CSNK2A1 Foundation is accepting applications for Simons Searchlight's 2027-2028 Community Advisory Committee (CAC) on September 28, 2026.
Reported by CSNK2A1 Foundation
Presence & Recognition
CSNK2A1 Foundation is hosting a group fun run in honor of their daughter Harper with a goal of raising $2,500 for OCNDS research.
Reported by CSNK2A1 Foundation
Capital & Finance
CSNK2A1 Foundation is raising $50,000 for OCNDS research through Bold Breakthroughs: Move Your Way for OCNDS.
Reported by CSNK2A1 Foundation
Presence & Recognition
CSNK2A1 Foundation released Episode 5 of Roadmap to Rare yet featuring Jennifer Sills, Founder and President, sharing the story behind the foundation.
Reported by CSNK2A1 Foundation
Presence & Recognition
CSNK2A1 Foundation is hosting the 2027 Drive for Diagnosis Golf Classic on Monday, April 19, 2027, to raise critical funds for OCNDS research.
Reported by CSNK2A1 Foundation