Company intelligence
Dravet Syndrome Foundation
Supporting Families Funding & Accelerating Research Advancing Towards a Cure Community. Research. Progress.
Philanthropic Fundraising Services
Cherry Hill, US
24 employees
Founded 2009
2 public signals
About Dravet Syndrome Foundation
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. We fulfill our mission through our four key programs: • Research Grant Awards • DSF Research Roundtable • IICEPR (International Ion Channel Patient Registry) • Patient Assistance Grant Program
Verified activity
Signals from Dravet Syndrome Foundation
2 published signals
Products & Services
Dravet Syndrome Foundation created a new Research and Clinical Trial Updates group within the DSF Family Network to help families and caregivers follow clinical trials, treatment developments, and scientific updates related to Dravet syndrome.
Reported by Dravet Syndrome Foundation
Partnerships
Dravet Syndrome Foundation supported the DSF Family Network Ambassador Program by thanking Jazz Pharmaceuticals and UCB for their investment.
Reported by Dravet Syndrome Foundation