Company intelligence
Emily's Entourage
Fast Breakthroughs for Cystic Fibrosis
About Emily's Entourage
Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from existing mutation-targeted therapies. CF is a fatal genetic disease primarily affecting the lungs and digestive system. Founded by Emily Kramer-Golinkoff, a woman with advanced stage CF, and her devoted friends and family, the organization has been featured in national media, including the New York Times, STAT, CNN, People, and more. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a now-acquired CF gene therapy company, developed a patient registry and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development. The organization’s work is particularly critical now as revolutionary breakthroughs are available for roughly 90% of the CF population, but those in the outlying 10% that unfortunately do not benefit from these major advances. The work of EE is laser-focused on changing that — and doing it fast, so nobody is left behind
Verified activity
Signals from Emily's Entourage
5 published signals
Research & Knowledge
Emily's Entourage is committed to accelerating research that will bring effective mutation-targeted therapies to every person with cystic fibrosis, regardless of their mutation.
Reported by Emily's Entourage
Research & Knowledge
Emily's Entourage is tracking the State of the Science for the final 10 percent of people with cystic fibrosis, including Colton.
Reported by Emily's Entourage
Research & Knowledge
Emily's Entourage received a 2026 Translational Research Grant funding from David T. Pride, MD, PhD at UC San Diego School of Medicine to develop an inhaled therapy combining phages and antibiotics targeting drug-resistant infections like Achromobacter.
Reported by Emily's Entourage
Products & Services
Emily's Entourage created CF Clinical Trial Connect (CTC), a global patient database exclusively for people with cystic fibrosis who are unable to benefit from current CFTR modulators.
Reported by Emily's Entourage
Presence & Recognition
Emily's Entourage is hosting an inaugural State of the Science: EE Edition webinar on Tuesday, September 1, 2026, at 7:30–8:30 p.m. ET, featuring leadership and scientific team discussions on research, strategy, and the scientific roadmap for people with cystic fibrosis.
Reported by Emily's Entourage