Company intelligence
EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is now The RARE Foundation
Public Policy Offices
Washington, US
51–200 employees
Founded 2009
4 public signals
About EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.
Verified activity
Signals from EveryLife Foundation for Rare Diseases
4 published signals
Strategy & Corporate Development
EveryLife Foundation for Rare Diseases is beginning a new chapter with its new identity and new website.
Reported by EveryLife Foundation for Rare Diseases
Presence & Recognition
EveryLife Foundation for Rare Diseases hosted the first exhibition of Rare Artist at Children's National - Main Hospital featuring 30 pieces created by children, teens, young adults, and caregivers.
Reported by EveryLife Foundation for Rare Diseases
People
EveryLife Foundation for Rare Diseases is accepting applications for a Rare Giving Grant until September 25, 2026.
Reported by EveryLife Foundation for Rare Diseases