Company intelligence
Friedreich's Ataxia Research Alliance (FARA)
Our mission is to treat and cure FA by marshaling and focusing global resources and relationships.
About Friedreich's Ataxia Research Alliance (FARA)
The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.
Verified activity
Signals from Friedreich's Ataxia Research Alliance (FARA)
5 published signals
Research & Knowledge
Friedreich's Ataxia Research Alliance (FARA) has recommended more than $36 million for Ataxia research through the Congressionally Directed Medical Research Programs (CDMRP).
Reported by Friedreich's Ataxia Research Alliance (FARA)
Research & Knowledge
Friedreich's Ataxia Research Alliance (FARA) awarded the Award for Innovative Mindset (AIM) to Nicholas Goeden, PhD, at Asymptote Genetic Medicines Inc, Pasadena, CA, to develop precision gene therapy technologies for Friedreich’s ataxia.
Reported by Friedreich's Ataxia Research Alliance (FARA)
People
Friedreich's Ataxia Research Alliance (FARA) member Maureen Juip gives her time to the organization and the entire family.
Reported by Friedreich's Ataxia Research Alliance (FARA)
Presence & Recognition
Friedreich's Ataxia Research Alliance (FARA) announced the 3rd Annual Gene Therapy Initiative (GTI) Symposium will be held on September 16 at the Salk Institute in La Jolla, California.
Reported by Friedreich's Ataxia Research Alliance (FARA)
Presence & Recognition
Friedreich's Ataxia Research Alliance (FARA) and NAF are hosting the 8th annual United Against Ataxia Hill Day on September 23, 2026, which is the last day to register for Hill Day 2026.
Reported by Friedreich's Ataxia Research Alliance (FARA)