Company intelligence
Orsini - Rare Disease Pharmacy Solutions
Your Leader in Rare Disease and Complex Therapy Programs
About Orsini - Rare Disease Pharmacy Solutions
Providing patients with comprehensive and compassionate care since 1987, Orsini is the leading, independent specialty pharmacy focused on rare diseases, gene therapies, and complex conditions. Orsini’s high-touch care model centers around compassionate, therapy-specific care teams who provide personalized care to patients based on their specific condition and treatment. The company’s comprehensive solutions include medication adherence programs, data analytics, customized manufacturer programs, and nationwide nursing coverage for convenient in-home infusion services. Headquartered in Elk Grove Village, IL, Orsini Specialty Pharmacy holds accreditations with the Accreditation Commission for Health Care (ACHC), NABP, and ACHC’s Distinction in Rare Diseases and Orphan Drugs. Conditions Treated Include: CLN2 Disease Molecularly Confirmed Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD) Duchenne Muscular Dystrophy (DMD) Mucopolysaccharidosis (MPS) Fabry Disease Paroxysmal Nocturnal Hemoglobinuria (PNH) Growth Hormone Deficiency Pompe Disease Gaucher Disease Phenylketonuria (PKU) Hereditary Angioedema (HAE) Progressive Keratoconus Hereditary ATTR (hATTR) Spinal Muscular Atrophy (SMA) Hunter Syndrome Tardive Dyskinesia Idiopathic Pulmonary Fibrosis (IPF) X-Linked Hypophosphatemia (XLH)
Verified activity
Signals from Orsini - Rare Disease Pharmacy Solutions
8 published signals
Presence & Recognition
Orsini - Rare Disease Pharmacy Solutions recognized the importance of the Duchenne awareness day in honoring and uplifting patients and families affected by Duchenne muscular dystrophy.
Reported by Orsini - Rare Disease Pharmacy Solutions
Presence & Recognition
Orsini - Rare Disease Pharmacy Solutions built a presence in just over a year, highlighting the growing visibility of South Florida biotech.
Reported by Raquel Cabo
Presence & Recognition
Orsini - Rare Disease Pharmacy Solutions sponsored the Jett Foundation's luncheon and virtual awareness activities as World Duchenne Awareness Day is celebrated.
Reported by Orsini - Rare Disease Pharmacy Solutions
Operations & Supply
Orsini - Rare Disease Pharmacy Solutions closed its pharmacy Monday, September 7th.
Reported by Orsini - Rare Disease Pharmacy Solutions
Presence & Recognition
Orsini - Rare Disease Pharmacy Solutions is participating in the Pulmonary Fibrosis Foundation's Community Walk in Chicago this September to honor Pulmonary Fibrosis Awareness Month.
Reported by Orsini - Rare Disease Pharmacy Solutions
People
Orsini - Rare Disease Pharmacy Solutions welcomed Shana Frantz as a new employee to continue her career while helping build teams.
Reported by Shana Frantz
People
Orsini - Rare Disease Pharmacy Solutions is hiring a Director, Account Management to join the team in Elk Grove Village, IL and Columbus, OH.
Reported by Orsini - Rare Disease Pharmacy Solutions
Partnerships
Orsini - Rare Disease Pharmacy Solutions is honored to serve as a specialty pharmacy partner for Priovant Therapeutics' LISRAYA (brepocitinib)
Reported by Orsini - Rare Disease Pharmacy Solutions