Company intelligence
PKD Foundation
We give hope. We fund research, advocate for patients and build a community for all impacted by PKD.
About PKD Foundation
The PKD Foundation is a not-for-profit organization dedicated to finding treatments and a cure for polycystic kidney disease (PKD). Our mission: We give hope. We fund research, advocate for patients and build a community for those affected by PKD. Our vision: #endPKD The PKD Foundation founded in 1982 by Joseph H. Bruening and Jared J. Grantham, M.D., and is headquartered in Kansas City, MO PKD Connect: Whether you are looking for information, resources or just a shoulder to lean on, PKD Connect gives you the support to keep hope within reach. Visit PKD Connect at connect.pkdcure.org
Verified activity
Signals from PKD Foundation
8 published signals
Products & Services
PKD Foundation launched the ADPKD Registry as a patient-powered engine for discovery that captures real-world insights from people living with PKD.
Reported by PKD Foundation
Presence & Recognition
PKD Foundation President and CEO Susan Bushnell shared why the generational impact of polycystic kidney disease is a driving force behind the mission.
Reported by PKD Foundation
Presence & Recognition
PKD Foundation volunteers officially recognized September 4 as PKD Awareness Day
Reported by PKD Foundation
Presence & Recognition
PKD Foundation shared stories from the community about Kendra Washington's journey to kidney failure, dialysis, a kidney transplant, and the PKD Foundation's role in raising awareness.
Reported by PKD Foundation
Partnerships
PKD Foundation, Critical Path Institute (C-Path), and CDISC are expanding their collaboration to develop Version 2.0 of the Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD)
Reported by PKD Foundation
Partnerships
PKD Foundation partnered with CURA Strategies to advance the PKD community's voice.
Reported by PKD Foundation
Legal & Regulatory
PKD Foundation is working with Advocacy Champions Network to pass the PKD Cures Act, which is focused on advancing research and innovation for polycystic kidney disease.
Reported by PKD Foundation
Legal & Regulatory
PKD Foundation announced that the PKD Cures Act (H.R. 9169) is a bipartisan federal legislation focused on advancing PKD research, expanding NIH research, strengthening collaboration, and creating a long-term roadmap for future discoveries and treatments.
Reported by Susan Bushnell