Company intelligence
Rare Disease Research, LLC
Independent clinical research sites for rare disease clinical trials.
About Rare Disease Research, LLC
As an independent clinical research site, we are 100% dedicated to conducting clinical research, accelerating the development of safe and effective treatments and providing rare disease patients with access to innovative investigational therapies. We are a passionate, caring, multi-disciplinary team conducting clinical research with expertise and compassion, and always to the highest ethical standards.
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Signals from Rare Disease Research, LLC
4 published signals
Presence & Recognition
Rare Disease Research, LLC attended this year's Rare Trials Summit next week in Boston.
Reported by Rare Disease Research, LLC
Presence & Recognition
Rare Disease Research, LLC announced that the Rare Trials Summit will take place in Boston from September 14 to 16, 2026, with registration still open.
Reported by Miro Pastrnak, PhD
Presence & Recognition
Rare Disease Research, LLC hosted the Rare Trials Summit in Boston from September 14 to 16, 2026, featuring 2 in 3 attendees at Director-level or above, 40+ clinical-stage pharma and biotech companies, 30+ patient advocacy organizations, and three current FDA speakers.
Reported by Miro Pastrnak, PhD
Presence & Recognition
Rare Disease Research, LLC is attending the Rare Trials Summit in Boston from September 14 to 16, 2026, to discuss patient organizations as evidence partners, retention by design, myth-busting hybrid and home-based trials, and from parent advocacy to IND.
Reported by Miro Pastrnak, PhD