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Products & ServicesEvent: September 3, 2026

ALS Therapy Development Institute launched the Multi-condition Patient Registry Mockup, a complete registry data dictionary rendered as the experience a participant would have with 11,000+ questions, a variable library, and a REDCap-format data dictionary.

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Products & Services

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The Multi-condition Patient Registry Mockup is a complete registry data dictionary rendered as the experience a participant would have

Danielle B.|ALS Therapy Development Institute team

Company

ALS Therapy Development Institute

We are the world's foremost drug discovery lab focused solely on ALS. Our mission is to discover and develop treatments.

Industry
Biotechnology Research
Location
Watertown, US
Company size
67 employees

The ALS Therapy Development Institute (ALS TDI) and its researchers discover and develop potential treatments for ALS. It is the world’s first and largest nonprofit biotech focused 100 percent on ALS research. Led by drug development experts and people living with ALS, ALS TDI understands the urgent need to slow and stop this disease. Based in the Greater Boston Area, ALS TDI has over 30 full-time, industry trained, drug development experts on staff. ALS TDI is internationally recognized as a leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Rated a four-star nonprofit on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on research to find an effective treatment and cure. Learn more at www.als.net.

Founded 1999

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