CISCRP published an episode of The Next Phase discussing NIH's proposed two-part policy requiring plain language study results to be shared with participants in NIH-funded clinical research.
Published
Signal category
Research & Knowledge
Quote
“In our latest episode of The Next Phase, Kimbra Edwards, PhD discusses NIH's proposed two-part policy, which would require plain language study results to be shared with participants in NIH-funded clinical research”
— CISCRP team
Company
CISCRP
A nonprofit dedicated to informing the public about clinical research and developing health literacy resources.
- Industry
- Research Services
- Location
- Boston, US
- Company size
- 61 employees
CISCRP is a first-of-its-kind 501(c)3 nonprofit organization dedicated to educating and informing the public about clinical research participation and the role that each party plays as a participant in the process. CISCRP’s portfolio of services aim to understand and meet the health literacy needs of patients, participants, and clinical research professionals. CISCRP’s services support patient engagement and clinical trial education for study volunteers, clinical research stakeholders, and sponsor organizations. As an independent, neutral, nonprofit organization dedicated to community outreach and education, CISCRP is uniquely positioned to assist with a variety of services including developing plain language educational materials for patients, organizing, hosting, and facilitating patient advisory boards, conducting research to better understand public perceptions about research, increasing awareness through grassroots community events, and offering a free service for finding clinical trials. CISCRP’s staff and Board of Advisors have highly diverse backgrounds - from the clinical research, healthcare, and advocacy communities. CISCRP’s funding comes from a wide variety of sources including individual donors, government and research institutions, foundations, and corporations.
Founded 2004