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Presence & RecognitionEvent: September 1, 2026

Global Genes is contributing to an important initiative.

Published

Signal category

Presence & Recognition

Quote

Global Genes is excited to be contributing to this important initiative!

Global Genes team

Company

Global Genes

Leading patient advocacy organization working to eliminate the challenges of rare disease. #CareAboutRARE #RareDisease

Industry
Non-profit Organizations
Location
Washington, US
Company size
43 employees

Empowering the Next Generation Rare Disease Advocate. Global Genes and RARE-X officially merged into one organization December 2022 under the name Global Genes. Both organizations have been working toward the goal of empowering the next generation advocate both through their individual initiatives and their strategic partnership announced in 2021. RARE-X was born out of Global Genes after discussions with advocacy leaders, board members, partners, patients, and care partners, addressing a significant gap in access to tools, technology, and infrastructure. Hope. It’s in our genes.™

Founded 2009

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